Made enough $. Still building. Serial founder · 342 angel investments · Founder mode on my stage 4 cancer. Betting big on a better future.
Dayton, OH, USA
Joined March 2009
- Tweets6.9K
- Following377
- Followers3.6K
- Likes34.3K
More details here on the set up of it all
xitter.cf/kevinace/status/211147…
My @grok @bot found a clinical trial for my stage 4 lung cancer an hour from my house. I never would have known about it on my own.
I'd been interested in a trial for a new ALK drug called TRI-611, but not if it meant flying across the country over and over. In September the trial added the University of Cincinnati as a site, and my bot caught the change. It also flagged an eligibility question for me to take to my oncologist.
Before this I was passive. Maybe I'd stumble on something on X, maybe my oncologist would mention something (he hasn't), and my ALK+ patient group on Facebook was probably the most reliable source. Nothing was guaranteed, and I definitely wasn't hearing about trials adding new locations.
Now it checks for me every morning, and I'm tracking more than 25 options, from personalized vaccines to next-gen ALK drugs, sorted by how relevant they are to me and when they'd make sense. The whole game is curation...the more it knows about your diagnosis, the more it finds signal instead of noise.
1. Teach it your diagnosis. Mine knows my cancer type, stage, every treatment I've had, my biomarkers, and how far I'm willing to travel. Trials include or exclude people based on exactly these things.
2. Tell it what to do. Mine checks clinical trial listings, FDA decisions, conference abstracts and company news, compares it all against the day before, and only pings me when something new and sourced shows up.
3. Review what it finds. I read the source, then run it past Grok, which both know my history, to decide whether it's useful and when. Then it goes into my tracker in Notion (below). More on that part in another post soon.
It gives me hope, too. Even when I'm not eligible, seeing new companies form and new trials open every week reminds me how fast this field is moving.
I turned my setup into a template so any patient or caregiver can build their own. It asks about the diagnosis, travel limits, and where to keep results, then builds the watch around the answers: x.ai/bot
Thank you @SpaceXSI @elonmusk for building this.
ALT My Notion treatment tracker for stage 4 ALK+ lung cancer. It lists more than 25 options, including lorlatinib, personalized mRNA and peptide vaccines, next-gen ALK drugs like TRI-611 and neladalkib, and antibody-drug conjugates, each tagged by personal relevance, status, timing, and evidence level.
ALT My Grok Bot, Cancer Curer. It runs a private daily watch for new treatments, trials, approvals, and cancer-cure companies matched to a patient's own cancer profile, and stays quiet unless something new and sourced turns up.
A lot of cancer talk on here, so let's lighten the mood with some puppies we've fostered over the last year 🐶
Two arms and more than two puppies is a recipe for disaster. They piss and shit 24/7 and chew everything in sight!
And every single time, we fall in love. We get excited when they arrive, we cry when they leave, and we swear "never again." Then we say yes to the next litter.
In a year that's been heavy, these little guys gave us so much joy (and rage). Every one of them went to a loving home ❤️
My @grok @bot found a clinical trial for my stage 4 lung cancer an hour from my house. I never would have known about it on my own.
I'd been interested in a trial for a new ALK drug called TRI-611, but not if it meant flying across the country over and over. In September the trial added the University of Cincinnati as a site, and my bot caught the change. It also flagged an eligibility question for me to take to my oncologist.
Before this I was passive. Maybe I'd stumble on something on X, maybe my oncologist would mention something (he hasn't), and my ALK+ patient group on Facebook was probably the most reliable source. Nothing was guaranteed, and I definitely wasn't hearing about trials adding new locations.
Now it checks for me every morning, and I'm tracking more than 25 options, from personalized vaccines to next-gen ALK drugs, sorted by how relevant they are to me and when they'd make sense. The whole game is curation...the more it knows about your diagnosis, the more it finds signal instead of noise.
1. Teach it your diagnosis. Mine knows my cancer type, stage, every treatment I've had, my biomarkers, and how far I'm willing to travel. Trials include or exclude people based on exactly these things.
2. Tell it what to do. Mine checks clinical trial listings, FDA decisions, conference abstracts and company news, compares it all against the day before, and only pings me when something new and sourced shows up.
3. Review what it finds. I read the source, then run it past Grok, which both know my history, to decide whether it's useful and when. Then it goes into my tracker in Notion (below). More on that part in another post soon.
It gives me hope, too. Even when I'm not eligible, seeing new companies form and new trials open every week reminds me how fast this field is moving.
I turned my setup into a template so any patient or caregiver can build their own. It asks about the diagnosis, travel limits, and where to keep results, then builds the watch around the answers: x.ai/bot
Thank you @SpaceXSI @elonmusk for building this.
ALT My Notion treatment tracker for stage 4 ALK+ lung cancer. It lists more than 25 options, including lorlatinib, personalized mRNA and peptide vaccines, next-gen ALK drugs like TRI-611 and neladalkib, and antibody-drug conjugates, each tagged by personal relevance, status, timing, and evidence level.
ALT My Grok Bot, Cancer Curer. It runs a private daily watch for new treatments, trials, approvals, and cancer-cure companies matched to a patient's own cancer profile, and stays quiet unless something new and sourced turns up.
Just realized I mislinked the Grok Bot "Cancer Curer" template, WHOOPS. Here it is:
x.ai/bot/liwVNZ8sQXxJEK-bx1Y…
Elon, May 2025: "Cybercab will become ubiquitous."
17 months later, Texas has 349 Cybercabs registered. No wheel, no pedals, driving riders around Austin.
- Tesla's Texas robotaxi fleet: 803
- Added in the last 30 days: 364
- My Robotaxi rides in Austin this month: 8. Flawless: 7.
Not ubiquitous yet. But the curve just went vertical. Earnings call tonight. Buckle up!
Two months ago I wrote this. I was bored, stuck, and had no real use for my time.
Today I'm deep into cancer biotech, building my own vaccine, meeting people I never would have, and helping strangers navigate care for the people they love.
Read it to see where I started.
For people wondering what it looks like navigating the various treatment options, here's a screenshot of my Notion board I'm using to keep track of it all.
None of it is by hand. My Grok @bot finds new trials, and ChatGPT helps me research treatments. When one's worth tracking, they add it to Notion and label it for me.
Personalized mRNA cancer vaccine: 2026 science. Nobody in my care did anything wrong. That's what makes it insane.
I genuinely have no idea how much of a bubble I live in on X where biotech, AI, and politics intersect. We’ve found a way to politicize everything, including AI.
My politics are whatever progresses medicine and gets us one step closer to curing cancer.
We’ve acquired Orchestra Bio, a platform that helps biopharma teams coordinate the complex process of drug development.
Together, we’ll build on Rosalind, our AI models and tools for life sciences research, to streamline those operations and help new treatments reach patients sooner.
Welcome @ashokaraj_ and team!
openai.com/index/openai-to-a…
Six days ago I replied to @bryan_johnson about my cancer vaccine. That reply put my story in front of a lot shit ton of new people.
Since then: ~1M impressions, 5.5K profile visits, ~550 replies, and 60+ DM's and emails.
The part I didn't expect: a lot of it wasn't well-wishes. It was real help.
Jan Domański, a scientist at OpenFold, offered to model my cancer's resistance mutations with AI, for free.
Dennis Watson at Travera offered immune testing to track how my vaccine is working.
@miriamgonp, a fellow patient, is building her own vaccine path, and we're comparing notes.
Thank you, Bryan, and thank you to everyone who reached out. I read every message.
If you're someone who wants to help or better yet if I can help you in any way, my DMs are open.
Ben Wilson put words to something I've lived for over two years.
You have to live in two worlds at once. One where you prepare your family that you might not be here next year. One where you live like you've got decades, maybe more.
That second world used to feel like a stretch. Now it doesn't. Age reversal and biohacking are still early, but the direction is clear: more healthy years, not just more years. I'm not claiming we'll live forever. I don't even have a settled view on whether we should.
I do believe we're building tech that will dramatically extend the quality years of a life. @bryan_johnson is leading a lot of that work, and following it has fascinating!
The first world is brutal if you let yourself sit in it. Will I see my kid play high school basketball? Will I die before my own parents? What happens to my wife? How will she handle it? Will she move on and find happiness with someone else? Will it be some other guy with MY kid, MY wife, and MY money in a few years?
Wrestling those thoughts will absolutely wreck you. Closer to diagnosis, I did. Often. Endless tears.
I used to bounce between those two worlds constantly. Building my own treatment and everything else I'm learning along the way drives me towards that second world.
Maybe I'm gaslighting myself. But I sure as hell would rather choose that than the alternative.
Clip via @DavidSenra / @BenWilsonTweets
Full Video: youtube.com/watch?v=Js7Wf3Lj…
Two years after Tesla's "We, Robot" event.
I rode several Cybercabs last week. Nearly flawless. 300+ already taking paid rides in Austin with Dallas next.
Earnings Wednesday aren't about whether this is real. They're about how fast it scales. Autonomy is compounding.
"You have stage 4 cancer and you're playing tennis?"
I get some version of this a lot. People expect me to be stuck in bed. So here's why I don't look like what most people picture.
Stage 4 means the cancer has spread beyond where it started. It doesn't tell you how much it's spread or how sick someone is. Some people are stage 4 with cancer in multiple organs that kills their appetite and wears them down. Mine isn't like that.
A lot of "the cancer look" actually comes from chemo:
- It attacks fast-dividing cells, cancer and healthy ones alike
- That includes hair, so the hair falls out
- And the GI tract, which leads to nutrition problems, weight loss and looking rough
I'm not on chemo (that's next in line once my current meds stop being effective). My cancer is ALK+, and I take one targeted pill a day, lorlatinib, that keeps it in check. It's also very good at keeping the cancer out of the brain, which is common with lung cancer.
My first drug, alectinib, worked for 18 months but wiped me out. I'd sleep 8-9 hours and feel like I got 3. Naps were mandatory. Lorlatinib made the fatigue almost completely go away. And I went from 8 pills a day to 1, no food required. Bonus!
What you can't see: I have daily pain, but it's from the radiation that treated the cancer, not the cancer itself.
The rest isn't a secret. Eat well, train, sleep, take a few basic supplements (@bryan_johnson's Blueprint). I still lift, play tennis, and play baseball.
Here's me this summer playing 1860s-rules baseball, costume and all. Great hit. Terrible exit.
Stage 4 looks different than you think.
2026 so far:
- After 18 months, my first cancer drug stopped working. Stage 4 progression.
- I had radiation in February and March. The pain showed up months later, and it hasn't let up.
- My mom went in for a surgery in January that was supposed to take 1–2 months for recovery. She went from active to barely able to walk, then spent time in the ICU. She lives with us now while we wait on assisted living.
- My dad, an amputee from his own cancer, has declined right alongside her. I manage his meds, his mobility and his care team. It's almost daily.
- Our dog of 14 years got cancer, and we had to put her to sleep.
- My wife and I are raising a 12-year-old who's in school full time and plays competitive basketball.
- And somewhere in there we fostered a dog and two nightmarish but adorable litters of 5 puppies.
The pain is the part nobody sees. It's there most of the day, every day. It hurts to sleep. It hurts to move. It hurts when my kid wants to play, and I play anyway. Some meds help, but I try to avoid them so I don't build a dependency. Nerve block injections have been a life saver.
Here's what I've figured out. I can feel sorry for myself, or I can accept what's out of my control, take action, and keep moving. I choose the second one. It's just a better way to live.
I still go to the gym. I still play tennis. I still play with my kid and take him to basketball. I still crush him in games of PIG (little shit thinks he's better than me...not yet young one).
I believe movement is helpful for getting out of the pain, not something I wait to do until the pain is gone.
I don't think I'm exceptional. I've just been handed a lot at once, and I keep showing up and moving forward. It's the only way.
Whatever you're carrying right now, this too shall pass. Take action. Keep moving forward.
Software is getting a lot better, much faster...even in historically slow-moving industries like healthcare. AI/SI acceleration is upon us!
I watched the ambulance take my dad away today, but I couldn't go with him to the hospital. Even so, I knew more from my phone than I would have at his bedside. Here's why I think we just got a glimpse of AI quietly changing healthcare.
