Patch

#NewProfilePic #34thbirthday

With all the med depression & noise/wind/ a/c trigger risk, plus a pharmacy miscount, I used to be afraid till I was prescribed rescue nasal spray. Either way, I’m singing 🎶 Don’t fear the seizure 🎶 post ictal to feel better. 🤬😭😅

Found my @ochocinco jersey from middle school in storage!

That’s what my week long EMU stay didn’t understand since my meds died completely for the very first time in 2019. Alas, my body fell asleep for me & I got 3 hours of a sleep a night after the nurses were checking my vitals. Never thought Jalen Hurts would beat me! 😴

“You can’t do this to me! I went to college!”- You *In Plankton’s voice*

👌

Sometimes it’s shunt revisions, while other times it’s prior authorization for seizure meds! 😅

I was recently suggested gene therapy. Had to explain that it wouldn’t work for my birth epilepsy & how eugenicist it was. No one prepared me for how much more I’d be getting those comments for publicly advocating. CP & my shunt also prepared me so I’m good! 😅

“Why are you so gd spastic?”- Someone in their best Legally Blonde Jennifer Coolidge voice “B/c I was born that way!”- Me #CerebralPalsy #epilepsy

Works for regular & post seizure stress!

No. When they withdraw a seizure is when things get messy!

🧠⚡️🥴👨🏻‍🦰🎩

“Where’d you get that idea?” “Uhh… internet!”

I have CP & hydrocephalus too. Epilepsy is a bit easier b/c I used to only seize w/ med tolerance. If meds are right, it’s now a startle reflex. Just take rescue spray w/ me & it should be fine like every other adaptation.

I didn’t know I was an actor too! 🤔

“Wonderful weather we’re having!”

I panic like I missed a step before I cuss & administer rescue spray juuuuuust before avoiding dropping & flopping!

When someone laughs, I follow. Aggressive smiles make me feel like the other person is in a cult.

“He yelled 🤬 & it was only in his leg w/o convulsions! That’s a focal aware! Right it down!!” 😅