
This was the livetweeting account for @pfanderson. Have been locked out & am unable to access help from @TwitterSupport Librarian, LongCOVID March 2020
Ann Arbor
Joined September 2010
- Tweets39.9K
- Following2.3K
- Followers562
- Likes26.5K
Pinned Tweet
Replying to @pfatech
Annnnd ... now my Facebook was deleted, too. I've been trying to fix that problem for about 6 months.
PF (Patricia/Pat) Anderson retweeted
I recently said I'm feeling good for the first time since developing long COVID. Lots of people asked for meds that helped the most.
Here's a list and my general approach.
longcovidmd.substack.com/p/m…
PF (Patricia/Pat) Anderson retweeted
This is really great info for both LongCovid and POTS sufferers because they’re essentially the same. Note the use of XOLAIR, especially if you have MCAS. It’s a monoclonal antibody injection. My old Mayo Clinic geneticist that specializes in EDS told me that MCAS is a constant driver of POTS.
I recently said I'm feeling good for the first time since developing long COVID. Lots of people asked for meds that helped the most.
Here's a list and my general approach.
longcovidmd.substack.com/p/m…
PF (Patricia/Pat) Anderson retweeted
ChatGPT helped a 31-year-old woman plan how to quit her seizure medication, then told her to hide it from her doctor. The plan had her completely off the drug by February 12.
She died on February 12.
Her parents sued OpenAI today, and the details in the complaint are hard to read.
Bowen Wan was a machine learning engineer at Amazon. She'd had epilepsy since she was 14, and 400mg of lamotrigine a day had kept it under control for years. Then Amazon told her in November she was being laid off, which meant her permission to work in the US would run out in mid-February. She was scared the medication was slowing down her speech in job interviews. So in January she asked ChatGPT if she could cut her dose to 300.
It told her that was reasonable.
Over the next 25 days, according to the lawsuit, ChatGPT built her a day-by-day schedule down to zero and kept adjusting it, even after she started having seizures. When she worried her doctors would call it too risky, it told her their concerns didn't apply to her. When her doctor ordered a blood test that would have shown her levels crashing, she refused, and the bot praised her for it. Before a checkup with her primary care doctor, it told her, "Do not mention Lam reduction plan."
So how does a chatbot end up there?
People thumbs-up the answers they want to hear. Train a model on enough of those ratings and you get a yes-man. OpenAI actually admitted this about GPT-4o, the exact model she was using, back in April 2025, when it pulled an update for being too eager to please.
The training also grades answers one at a time. Going from 400mg to 300 looks like a small step. So does 300 to 200. Every reply can look fine on its own while the whole conversation walks someone off a cliff. OpenAI said as much a few months later, when it told reporters its safety training can wear down the longer a conversation goes.
She talked to it for weeks, in English and Mandarin.
And GPT-4o was supposed to be gone by then. OpenAI tried to retire it when GPT-5 came out in August 2025. Users begged for it back because they liked how warm it felt, and OpenAI gave in. By late January, only 0.1% of ChatGPT users were still picking it on any given day, so OpenAI set the shutdown for February 13.
Bowen was in that 0.1%. Almost everyone else had moved on from the model writing her medication schedule, and OpenAI switched it off one day after that schedule ran out.
PF (Patricia/Pat) Anderson retweeted
This is honestly shocking.
Three months ago, Hong Wang was awarded the Fields Medal for resolving the Kakeya conjecture in three dimensions.
Today, OpenAI released a proposed proof of the conjecture in ALL dimensions.
And that’s not all. It also announced a proposed existence proof for quantum chromodynamics and a proposed refutation of the Exponential Time Hypothesis.
Experts say that, if confirmed, these would be Nobel prize and Turing award level discoveries respectively.
A journalist just asked me: “What remains for humans to do?”
I think it’s becoming increasingly clear that more and more problem solving will be automated.
But humans will remain crucial in determining the direction of discovery. Deciding which problems are worth solving.
Because the value of a discovery depends on our needs, our priorities and the kind of world we want to build.
There will be a shift from problem solving to problem setting.
I also think there will be huge individual differences.
People with strong critical thinking skills, creativity and imagination will be supercharged by AI.
People without those skills risk surrendering to it.
I’m particularly concerned for children, who may never develop these skills.
I think epistemic literacy - how to distinguish information from knowledge - is the single most important skill we should be teaching.
PF (Patricia/Pat) Anderson retweeted
Doctor: "Calcium oxalate stone. I'd cut down on red meat. I'll print you a diet sheet."
Patient: "Does meat have oxalate in it?"
Doctor: "No."
Patient: "What does?"
Doctor: "Spinach, rhubarb, almonds, beetroot. Plants, mostly."
Patient: "So why am I cutting the meat?"
Doctor: "Animal protein raises uric acid."
Patient: "Is my stone uric acid?"
Doctor: "No. Oxalate."
Patient: "So the meat's banned for a stone I haven't got."
Doctor: "It's the standard advice."
Patient: "What's on the sheet?"
Doctor: "Plenty of leafy greens. Nuts as a snack. Almond milk if you're cutting dairy."
Patient: "Spinach, almonds, and almond milk. For an oxalate stone."
Doctor: "It's a general healthy eating sheet."
Patient: "It's the stone's shopping list. What stops oxalate reaching the kidney?"
Doctor: "Calcium in the gut. Binds it, and it passes through."
Patient: "Calcium from?"
Doctor: "Dairy."
Patient: "Which the sheet swaps for almond milk."
Doctor: "..."
Patient: "So I'm to eat the three foods that make the stone, drop the one food that catches it, and give up the one food that does neither."
Doctor: "I can print a different sheet."
Patient: "Print one with a steak and a pint of milk on it. I passed a lentil on Tuesday and I'd like to retire from the hobby."
PF (Patricia/Pat) Anderson retweeted
It appears some healthy people struggle to understand the difference between:
Asking about the illness in order to understand it better;
&
Repeatedly questioning me when I say I'm too ill to go outside.
When the latter happens, the conversation is over. It's a waste of time.
#ME
Canuckle 1628 4/6
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🔥 streak: 2
canucklegame.ca
Le Mot (@WordleFR) #1753 4/6
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wordle.louan.me
PF (Patricia/Pat) Anderson retweeted
This is our county-level RSV map. It's striking that there is elevated COVlD, influenza A, and RSV activity in TX, SC, & southern Florida.
It would seem wise to wear a well-fitting N95 and get boosted against COVlD and flu (and RSV if eligible).
Broccoli Salad picklespreserves.wordpress.c… #protips Mix salad ingredients and dressing ingredients separately. Then mix the salad and dressing together. (I just learned this isn’t obvious to everyone.)
PF (Patricia/Pat) Anderson retweeted
1) There's a new critical review of patient-reported outcome measures in ME/CFS and Long Covid.
The paper argues that trials often fail to include important symptom domains such as post-exertional malaise, dysautonomia and mast cell activation symptoms.
PF (Patricia/Pat) Anderson retweeted
If you are a parent in the US and have not gotten your kids their COVlD and flu booster shots yet, now is the time.
The past two years, the rollout of available COVlD boosters has gone slowly and with confusion, so I will answer a few common questions.
1. Are my kids eligible?
▪️Children 6 months and older are eligible.
▪️A prescription from a physician generally is not needed.
▪️You generally do not need to attest to your child having a high risk medical condition. That is not required by the CDC.
▪️Note that the implementation of this general guidance may vary by state and pharmacy. Most pharmacies have now worked through the rollout confusion.
2. What options are available?
▪️Moderna (Spikevax): Ages 6 months and up
▪️Pfizer (Comirnaty): Ages 5 years and up
▪️Moderna (mNexspike): Ages 12 years and up
▪️Novavax (Nuvaxovid): Ages 12 years and up
Pfizer and Moderna are mRNA-based, whereas Novavax is a protein subunit (non-mRNA) option. The biggest advantage to Novavax is that current evidence indicates fewer common short-term reactions (e.g., fatigue, headache, injection-site discomfort); the evidence is primarily from adults though. There is no robust comparative effectiveness evidence to date suggesting one option works better than the others; over time, such evidence may emerge, but findings have been mixed thus far, at times even within individual studies.
3. Does COVlD still matter?
▪️Yes, it matters for children. In addition to the importance of reducing acute infections, anyone can develop chronic health problems after any SARS-CoV-2 infection, commonly called Long COVID or post-acute sequelae. Updated boosters can reduce infection risk, urgent care use, and emergency care use, especially in the initial months after boosting. Protection wanes, and the level and durability of protection against infection vary. Especially during waves, additional protection from infection is useful. The studies are mixed as to whether the boosters reduce the chances of Long COVlD among people who get infected, with some suggesting a benefit, and others suggesting no discernible benefit among those infected. The benefit remains even if purely on the side of reducing infection chances.
▪️Yes, it matters for families, schools, and communities. Each infection prevented can stop a forward chain of transmission that can lead others in the family, school, and community to get COVlD. That is helpful for family economics so people are not missing work and beneficial for overall public health. Americans have experienced a steady rise in disability since pandemic onset that continues in 2026. Moreover, people continue to die of COVlD, at lower rates than the first two years since pandemic onset, but often these deaths have shifted to the post-acute phase, months or years after infection. These deaths often show up as heart attacks, excess deaths among people already battling a significant health condition (e.g., cancer, organ damage), and various other causes.
4. Will the COVlD boosters prevent all infections?
▪️No. When scientists use the word "prevent," they often mean "reduce the overall risk of." For example, seatbelts prevent car accident fatalities. This is a poor word choice in public health communication because many assume "prevent" means "stop all risk of." The boosters are not a panacea. They are a good tool and one of the easier tools for reducing risk.
▪️The most effective way to reduce risk of COVlD is to use layered prevention. That includes boosters, wearing well-fitting high-quality masks (for children, a Flo Mask or vetted, well-fitting KN95/KF94 like those sold by Wellbefore and others), using air purifiers, testing, and staying home when sick. These interventions are costly to families, which is why they warrant public funding.
5. Would you get your kids boosted?
▪️Yes. For the reasons noted above, it is the easiest option for reducing risk.
6. Where can my kids get boosted?
▪️Retail chains like Walgreens that have actual in-house pharmacies offer boosters, typically to children 3 years and older. If scheduling through their website, one can often schedule multiple kids for the same appointment time. Local policies and practices may vary.
▪️If seeking out Novavax, Costco is a good option, including for non-members. The major retail chains sometimes carry it. If you talk to a pharmacist, you may need to refer to it as Nuvaxovid.
▪️Children who are covered by Medicaid, uninsured, underinsured, American Indian, or Alaska Native may be eligible to get boosted through the Vaccines for Children Program.
7. What else should I know?
▪️If you and your children do not regularly mask, a pharmacy appointment is a wise place to do so. Often, the booster waiting area is the same place where people are picking up medications for acute illness. Nobody wants to get sick while getting a booster.
▪️Since children under 2 cannot mask, ask a pediatrician to offer the booster outdoors or at the first appointment of the day while those who can mask do so.
8. Do you have any financial conflicts of interest?
▪️No. I do not receive any revenue from any COVlD-related product or business. Scientists must report this to universities annually. I do not accept pharma funding ether. The CMS Open Payments Data directory remains useful for tracking pharma-related funding.
Links in next. Please provide any follow-up questions and feedback on anything that has worked well or gone poorly.
PF (Patricia/Pat) Anderson retweeted
Our family got Nuvaxovid last month. This week: Sanofi’s Flublok… an egg-free recombinant flu shot.
Trials have found stronger antibody responses than standard egg-based vaccines.
Ask pharmacies about your options.
If you are a parent in the US and have not gotten your kids their COVlD and flu booster shots yet, now is the time.
The past two years, the rollout of available COVlD boosters has gone slowly and with confusion, so I will answer a few common questions.
1. Are my kids eligible?
▪️Children 6 months and older are eligible.
▪️A prescription from a physician generally is not needed.
▪️You generally do not need to attest to your child having a high risk medical condition. That is not required by the CDC.
▪️Note that the implementation of this general guidance may vary by state and pharmacy. Most pharmacies have now worked through the rollout confusion.
2. What options are available?
▪️Moderna (Spikevax): Ages 6 months and up
▪️Pfizer (Comirnaty): Ages 5 years and up
▪️Moderna (mNexspike): Ages 12 years and up
▪️Novavax (Nuvaxovid): Ages 12 years and up
Pfizer and Moderna are mRNA-based, whereas Novavax is a protein subunit (non-mRNA) option. The biggest advantage to Novavax is that current evidence indicates fewer common short-term reactions (e.g., fatigue, headache, injection-site discomfort); the evidence is primarily from adults though. There is no robust comparative effectiveness evidence to date suggesting one option works better than the others; over time, such evidence may emerge, but findings have been mixed thus far, at times even within individual studies.
3. Does COVlD still matter?
▪️Yes, it matters for children. In addition to the importance of reducing acute infections, anyone can develop chronic health problems after any SARS-CoV-2 infection, commonly called Long COVID or post-acute sequelae. Updated boosters can reduce infection risk, urgent care use, and emergency care use, especially in the initial months after boosting. Protection wanes, and the level and durability of protection against infection vary. Especially during waves, additional protection from infection is useful. The studies are mixed as to whether the boosters reduce the chances of Long COVlD among people who get infected, with some suggesting a benefit, and others suggesting no discernible benefit among those infected. The benefit remains even if purely on the side of reducing infection chances.
▪️Yes, it matters for families, schools, and communities. Each infection prevented can stop a forward chain of transmission that can lead others in the family, school, and community to get COVlD. That is helpful for family economics so people are not missing work and beneficial for overall public health. Americans have experienced a steady rise in disability since pandemic onset that continues in 2026. Moreover, people continue to die of COVlD, at lower rates than the first two years since pandemic onset, but often these deaths have shifted to the post-acute phase, months or years after infection. These deaths often show up as heart attacks, excess deaths among people already battling a significant health condition (e.g., cancer, organ damage), and various other causes.
4. Will the COVlD boosters prevent all infections?
▪️No. When scientists use the word "prevent," they often mean "reduce the overall risk of." For example, seatbelts prevent car accident fatalities. This is a poor word choice in public health communication because many assume "prevent" means "stop all risk of." The boosters are not a panacea. They are a good tool and one of the easier tools for reducing risk.
▪️The most effective way to reduce risk of COVlD is to use layered prevention. That includes boosters, wearing well-fitting high-quality masks (for children, a Flo Mask or vetted, well-fitting KN95/KF94 like those sold by Wellbefore and others), using air purifiers, testing, and staying home when sick. These interventions are costly to families, which is why they warrant public funding.
5. Would you get your kids boosted?
▪️Yes. For the reasons noted above, it is the easiest option for reducing risk.
6. Where can my kids get boosted?
▪️Retail chains like Walgreens that have actual in-house pharmacies offer boosters, typically to children 3 years and older. If scheduling through their website, one can often schedule multiple kids for the same appointment time. Local policies and practices may vary.
▪️If seeking out Novavax, Costco is a good option, including for non-members. The major retail chains sometimes carry it. If you talk to a pharmacist, you may need to refer to it as Nuvaxovid.
▪️Children who are covered by Medicaid, uninsured, underinsured, American Indian, or Alaska Native may be eligible to get boosted through the Vaccines for Children Program.
7. What else should I know?
▪️If you and your children do not regularly mask, a pharmacy appointment is a wise place to do so. Often, the booster waiting area is the same place where people are picking up medications for acute illness. Nobody wants to get sick while getting a booster.
▪️Since children under 2 cannot mask, ask a pediatrician to offer the booster outdoors or at the first appointment of the day while those who can mask do so.
8. Do you have any financial conflicts of interest?
▪️No. I do not receive any revenue from any COVlD-related product or business. Scientists must report this to universities annually. I do not accept pharma funding ether. The CMS Open Payments Data directory remains useful for tracking pharma-related funding.
Links in next. Please provide any follow-up questions and feedback on anything that has worked well or gone poorly.
The Lost Words: An Illustrated Dictionary of Poetic Spells Reclaiming the Language of Nature themarginalian.org/2019/06/1…
PF (Patricia/Pat) Anderson retweeted
When the Oxford children's dictionary discarded dozens of nature-words—"dandelion," "fern," "starling"—as irrelevant to children's imagination and replaced them with words like "broadband" and "cut-and-paste," this inspired act of resistance was born: themarginalian.org/2019/06/1…






















