Sambit Dash, PhD

Same medicine. ₹4 crore a year vs ₹2.5 lakh a year. 💔 A helpless mom came to me with her child, who has Allan-Herndon-Dudley syndrome (MCT8 deficiency). It was very painful to see them so helpless. I tried to find a solution as if it were my own child. I couldn't rest otherwise. Tiratricol wasn't available in India. Dr Santosh and I wrote to doctors. Dr Praveen and others directed us to the Erasmus team, who did the trials for Tiratricol. After many emails, they suggested Egetis Therapeutics might be able to support the child. I teared up. But our happiness was short-lived: Egetis said it could not give us the medicine. I wrote to many journalists. I posted on Instagram and tagged the PM. Someone told me Tiratricol was available in Germany. The mother bought it, paying ₹12 lakh for just one month. That's impossible to keep up for life, for this child or for the five other children with the same condition under Dr Praveen's care at CMC Vellore. Finally, Toufiq, a senior journalist, wrote about it, and it reached the Pharmaceutical Accountability Foundation in the Netherlands. They said Tiratricol can be made available at ₹2.5 lakh per child per year, against ₹4 crore per child per year by Egetis! I raised funds, and the Pharmaceutical Accountability Foundation raised funds. Now 7 children are getting the medicine free of cost for one whole year. (The 7th child was added after my Instagram post.) 🙏 Thank you to Access to Medicines India and Organization for Rare Diseases India for their important role, and to geneticist Dr Kishore, who helped us reach the diagnosis. India can compound the Active Pharmaceutical Ingredient here and make it available to every child with this condition at a reasonable cost. 👉 Please tag @narendramodi @JPNadda @MoHFW_INDIA People of India, you can make it happen! Please share. 🙏 All the paediatricians, endocrinologists, paediatric endocrinologists, and paediatric neurologists, if you are currently caring for a child with confirmed or suspected MCT8 deficiency, please share the details below. Our team may contact you for further clinical information and coordination regarding diagnosis, treatment and access to tiratricol. Please do not upload or share unnecessary patient-identifying information at this stage. docs.google.com/forms/d/e/1F… #AllanHerndonDudley #MCT8Deficiency #Tiratricol #Triac #Emcitate #RareDiseases #RareDiseaseIndia #AccessToMedicines #PharmaHijack #ChildHealth

The Revenge of the Indian American. TRUMP COSIED UP TO PAK. BERATED INDIA AND INDIAN AMERICANS. Big mistake. They voted to punish him.

If you want to understand the State of India’s education and our priorities, read this: 1. In Hyderabad, a university declared a holiday so that students can watch a movie. 2. In West Bengal, the Madhyamik exams were postponed as teachers were on census duty. 3. In Bareilly, schools were shut for a BJP padyatra about protecting democracy!! 4. In Ladakh, a school run by Soman Wangchuk is being asked to shut down. 5. In mumbai, 24 of the total 34 teachers of one school were moved to booth level officer duties. 6. In Karnataka, students got less scores as teachers busy on SIR duty couldn’t teach. 7. In Maharashtra, the election commission recommended alternate days of schooling so that teachers can do election related work. 8. In Maharashtra, 95 FIRs were filed against teachers who refused election work. 9. In Orissa, all schools were closed in a city during the PM’s visit. 10. Calcutta University moved its exams as Central forces were housed in 12 of its affiliated colleges and there was no space to hold exams. Demographic dividend, any one?

New PR video is out !!! 👍👏 MLA Sir is seen feeding special mudhi to the rescue team, while strangely skipping others. 😃

This guy is absolutely right. Odisha could have been like Wakanda, but it's like Congo now.