A supportive, empowering space for the ALS community to connect, learn, and drive change.
Joined June 2025
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ALS.Community retweeted
With ALS, there are no borders—no walls, tariffs, or divisions.
The only fight we face is the fight for a cure.
ALS knows no nationality, political affiliation, or passport. It affects families on every side of every border.
If we can come together around one issue, let’s find common ground in the fight against ALS and unite around what matters most: a cure.
Let hope bring us together. May the six degrees of ALS touch no one else.
@MichaelWheelson @Ml1969 @alsnewstoday @alsadvocacy @MJMcKean @JC75408607 @AntiTrumpCanada @NIH @USATODAY @ALSdotCommunity ✌️🌻
ALS.Community retweeted
We are all inspired by how Sarah chooses to live.
#fightlikeagirl @HerALSStory ⛳
“Get busy living, or get busy dying.”
I could easily fall into the latter after facing a 100% terminal diagnosis for more than 8 years. But that’s not how I choose to live. So, let me give you the weekly recap…
🏌️♀️ Monday: The 9th Annual Sarah’s Soldiers Golf Tournament
⚾️ Tuesday: A very special suite experience at the K
💙 Friday: Our last Friday date night at the K for the season
⚾️ Sunday: The final Royals game of the season, followed by so many heartfelt “see you laters.”
And tomorrow, we’ll be right back at the ball fields cheering on our oldest grandson.
ALS has taken a lot from me, but it will never take my desire to LIVE and show up for my people. Life is short. Don’t wait for the perfect moments. Live it while you have the chance. Stay tuned for pictures! Blessed beyond belief!
#ALS #FightLikeAGirl #SarahsSoldiers
ALS.Community retweeted
“It's perfectly fine to tell children learning about #ALS that we don't know" - @jodonnellames
That’s the magic of Hope Loves Company. When kids feel safe, the “I don’t know” answers become less frightening and remind them that they are not alone.
#Shorts youtube.com/shorts/fUmX-Tp3C… via @YouTube
@HopeLovesCo @alsdotcommunity 🌻
ALS.Community retweeted
Jeff Oppenheimer lost his wife to #ALS but is still fighting to change the future for others with @alsdotcommunity
#EndALS
What is @alsdotcommunity asked @tonyheyl from @ALSMidAtlantic - Founder Jeff Oppenheimer explains it all?
#NoMoreALSSilos @statnews @alsnewstoday @Ml1969 @alsnewstoday @alsadvocacy @JC75408607 🌻 #Caring
youtu.be/t2s3_jKEJyM?is=rqHF…
ALS.Community retweeted
What is @alsdotcommunity asked @tonyheyl from @ALSMidAtlantic - Founder Jeff Oppenheimer explains it all?
#NoMoreALSSilos @statnews @alsnewstoday @Ml1969 @alsnewstoday @alsadvocacy @JC75408607 🌻 #Caring
youtu.be/t2s3_jKEJyM?is=rqHF…
Living with ALS? Build YOUR dream care team! Join our FREE webinar on 10/13 @ 12 PM EST: "Building Your Care Team: ALS Caregiving 101." Learn WHO to ask, WHEN to ask, & HOW to navigate challenges. Empower yourself with practical tips from experts. 🔗als.community/networks/event…
als.COMMUNITY is your home for connection. We're a space where shared wisdom and empathy make us stronger, together.
At als.COMMUNITY, we're building a vibrant online home for the ALS community! Join our beta test as a patient, caregiver, friend, or pro. Your feedback will shape our future. Ready to make a difference? Learn more & sign up: als.community #ALS #Community
Welcome to als.COMMUNITY—a first-of-its-kind place to connect for people living with ALS, those who love them, and those who support them.
