Engineer. BMX. Powerlifter. Electronic music producer. Long Covid since March 2020 has put all that on hold, though 😓. https://xitter.gq/t.co/NwtnfzoDjG
Joined June 2011
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Alex Sprackland retweeted
Sorry to report that musician and poet James Strazza passed away this week. He had been suffering from severe ME since 2019. Condolences to family and friends.🕯️🕊️💙 (There's a link to his website in his Twitter bio.) #MyalgicEncephalomyelitis #MECFS
Please support my dear friend @jamesstrazza . A very severe #pwME who wrote an outstanding book full of stunning poems dedicated to those who are in search of meaning! #MECFS
Alex Sprackland retweeted
People who’ve never been chronically ill massively overestimate how much wellness hacks ‘cure disease.’
Sun, sauna, fasting, carnivore, peptides, supplements, yoga, etc
They’re optimization advice for healthy people. They rarely cure anything for the severely ill.
Alex Sprackland retweeted
Adults forced a young girl named “Cara” to remove her mask for their comfort.
Cara’s mother had cancer and was immune compromised.
Cara caught covid, gave it to her mom and her mom died.
Imagine doing that to a child because you don’t want to see a mask?
It’s appalling.
Alex Sprackland retweeted
My Covid infection 3 years ago was so “mild” that one could have easily mistaken it for a cold.
That I’m now, 3 years later, terminally ill due to the effects of it, should be a very scary sign, especially considering my young age and healthy lifestyle prior to it.
How many more are out there just like me, unaware of what’s happening to their health or what’s causing it ?
Scary to think about.
Alex Sprackland retweeted
March Long COVID illuminations:
USA 139
Australia 105
Belgium 2
Canada 119
Cyprus 4
England 42
France 2
Hungary 1
Ireland 9
Isle of Man 3
Luxembourg 2
Mexico 3+
Netherlands 1
New Zealand 11
N. Ireland 10
Puerto Rico 1
Romania 1
Scotland 14
Spain 36
Wales 9
Alex Sprackland retweeted
Before their Covid infection, our members were free to choose how they used each heartbeat.
Now, #LongCovid limits what they can use each beat for.
The change from before to after is obvious
#LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
ALT Side by side image. On the left a person wearing a red ski jacket, black helmet, and goggles stands on skis at the top of a snowy mountain slope with their arms raised, holding ski poles. Snow-covered mountains stretch across the background under dramatic clouds with sunlight illuminating the peaks. On the right a woman with blonde hair tied back, wearing sunglasses, a pink cardigan, blue cropped trousers sits on a mobility scooter. Her hands are holding the handlebars. There are grey railings, trees and water in the background.
Alex Sprackland retweeted
Five years ago, I lost my life to Long Covid and I never got it back.
#LongCovidAwarenessDay
#LongCovidAwarenessDay2026
Alex Sprackland retweeted
I was improving from another illness and walking four miles a day when I caught Covid in July 2020. I took my n95 off for 30 seconds to take my temp at a doctor
I’ve never been able to take a long walk since and I suffer flu like symptoms most days since #longcovidawarenessday
Sharing my own story on #LongCovidAwarenessDay, my one infection in June 2022, just a month after I had gotten a new job, began my health spiral that lead to me being unable to work full time & spending my energy clawing my health back. I was “young & healthy”, but unbeknownst to
Alex Sprackland retweeted
My sticker is still going strong! 👍
ALT Photo of rear end of a car with a LONG COVID & ME/CFS DESTROY LIVES bumper sticker.
Alex Sprackland retweeted
Long Covid affects people of all ages and includes a myriad of post-acute and long-term adverse health effects caused by the infection.
A 2024 #SciencePerspective highlighted the efforts made to understand this public health concern, what is known about the condition, and its wide-reaching effects on the risk of developing other chronic diseases.
Despite increasing knowledge of the mechanisms, epidemiology, and prevention, several challenges remain. First, the care needs of people experiencing Long Covid are consistently not met, and patients are often met with skepticism and dismissal of symptoms. Second, the lack of consensus on terms, definitions, and clinical trial endpoints for Long Covid, as well as the lack of animal models that can capture the breadth of Long Covid phenotype, are slowing progress and hampering the discovery of drugs that could improve patient health.
Addressing these challenges would not only provide insights into Long Covid but also other infection-associated chronic illnesses that have underappreciated long-term health impacts like myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).
Learn more on #LongCovidAwarenessDay: scim.ag/3DCyV2Q
Alex Sprackland retweeted
#Covid destroyed my family's health
I should feel lucky that I 'only' have moderate ME
I should feel lucky everyone in my close family knows the disease isn't psychological
I should feel lucky my son 'only' has moderate #LongCovid
I don't feel lucky
#LongCovidAwareness
#pwME
Alex Sprackland retweeted
Alex pointing out that he had zero vaccinations is important because there’s still a misconception about what Long COVID looks like and who it affects.
People assume if you were healthy, ate well, exercised, and did everything “right,” you’d be fine, or that severe outcomes only happen to people with other conditions.
I had zero vaccinations too.
Before COVID I was extremely athletic. At 42 I was still running timed miles under 7 minutes.
Then COVID hit, and life changed overnight. I’ve been primarily housebound for over 3 years.
Healthy people can lose their lives as they knew them in an instant.
Please listen to patients like Alex, myself, and hundreds of thousands of others worldwide who have nothing but time to educate ourselves on our diagnoses, compare notes on what works for us, and support each other so none of us have to navigate our new normals alone.
Today is my 6 year #LongCovid anniversary. Life unrecognisable. Still no treatments. Still don't know what is wrong...
Alex Sprackland retweeted
I am not sure why the fact that #MultipleSclerosis was frequently misdiagnosed with psychiatric disorders, including hysteria, until a spinal tap, CT and MRI were invented, is now being disputed by some people. Over the centuries, people with epilepsy too were demonized and mislabeled with all types of psychiatric diagnoses and religious attributions. Why am I talking about this?
Patients with neuroimmune disorders that affect the brain, the autonomic nervous system and the immune system are now on the same trajectory as MS and epilepsy patients used to be in the past. Some physicians are trying really hard to paint these disorders as psychiatric or psychologically-based. What these physicians have to offer to patients that they mislabel is not much: psychotherapy, PT and antidepressants. We don't treat patients with MS, epilepsy or migraine in that way, and we shouldn't be doing that to patients with #Dysautonomia, #MECFS and #LongCOVID. To be sure, we have a physical therapist, a nutritionist and a psychologist helping our patients, but in addition to, not instead of, medications that target autonomic dysfunction and other neurologic manifestations.
#Neurology and #Neuroscience are always evolving: those who want to keep us in the past are doing patients and the field a disservice. We need to keep moving forward - not rehash the same outdated false narratives - which is the goal of our paper. 🧠🚀
dovepress.com/postural-ortho…
Alex Sprackland retweeted
The Government should be investing properly in treatments for Long COVID.
Far too many people left in this situation: read Darren's story. 👇🏼
This time last year I lost my job due to #LongCovid.
Unsurprisingly it was an extremely difficult time.
I'd worked for the NHS as a Learning Disability Nurse for 20yrs.
Long Covid ended my career.
It also drastically altered my life.
Some reflections 👇
Alex Sprackland retweeted
Can we now have an investigation into the horrific waste of money this nonsense represents?
Millions of very sick people have had their lives wasted by this pointless biopsychosocial / rehab / psychosomatic diversion.
Real research, real treatment trials now!
Alex Sprackland retweeted
Amazing powerful protest for ME/CFS(and long covid) in from of Germany's ministry of research. Body bags symbolize patients left without medical help and research for their condition. LC ME advocates, take notes. Humanitarians take a look at yourselves and ask why are you absent.
