
Writer. Advocate. #LongCOVID #LongCOVIDkids since March 2020 #CPTSD #FBLC Subscribe to my weekly newsletter https://xitter.gq/t.co/JjwxbWjSal
PNW
Joined December 2008
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I’ve been talking with my kids a lot about interrupting patterns that aren’t working for us anymore. We are always practicing something. We are always strengthening some part of our mind, strengthening some neurological connection. #MentalHealthMatters
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How to make adjustments to vacation so that everyone is better taken care of. #family #vacation #summer #chronicillness
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Steps for #medical professionals working w/ people exp #chronicillness:
1: #Listen to those exp the illness
#data #people #medical #chronicillness #chronicdisease #longcovid #longcovidawareness #longcovidkids
The experts on chronic illness are the people living with chronic illness.
#chronicillness #chronicdisease #longcovid #longcovidawareness
What is Long COVID? Living with #LongCovid Q&A part 2.
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My brain struggled to process anything & I would doze in & out of sleep but the essence surrounding me were the happy voices of my kids & the warmth of Kendall’s arms. We were all able to be with each other just as we were, space for each of us, emotions tranquil for a day.
A friend started a GoFundMe for us to support our past and ongoing #medicalexpenses. Having 3 people in 1 family with severe #chronicillness is costly in many ways, including financially and so the support is something we desperately need. #LongCovid
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Grieving all I lost to #LongCOVID and #LongCovidKids in a culture living in denial. #Grief #mentalhealth
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Similarly, a few compounds that induce autophagy have been shown to reduce SARS-CoV-2 replication in cells. nature.com/articles/s41467-0…
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Here is a diagram that shows the DMV or "hidden closet" that the virus creates for replication.
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Speaking at #GVNScienceofLongCOVID, Daniel Chertow, MD, MPH, Head, Emerging Pathogens Section, @NIAIDNews, @NIH shares autopsy findings indicating SARS-CoV-2 persists in multiple organs and brain for months; foremost in the respiratory system tinyurl.com/mmmhe7ut
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More evidence of residual virus after initial recovery as a culprit for #LongCovid in some people
onlinelibrary.wiley.com/doi/… @GiaccaMauro
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Brain fog and other symptoms of #LongCovid appear to be correlated with delayed clearance of the virus from the upper respiratory tract, via 9 serial PCR assessments out to 42 days in 73 participants
medrxiv.org/content/10.1101/…






