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Writer. Advocate. #LongCOVID #LongCOVIDkids since March 2020 #CPTSD #FBLC Subscribe to my weekly newsletter https://xitter.gq/t.co/JjwxbWjSal

PNW
Joined December 2008
I’ve been talking with my kids a lot about interrupting patterns that aren’t working for us anymore. We are always practicing something. We are always strengthening some part of our mind, strengthening some neurological connection. #MentalHealthMatters mentalhealthandwellbeing.sub…
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How to make adjustments to vacation so that everyone is better taken care of. #family #vacation #summer #chronicillness mentalhealthandwellbeing.sub…
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2: See each and every data point as a person 3: Repeat steps 1 & 2 until you understand the issues that people who live w/ chronic illness everyday Only then move on to Step 4: Apply your medical knowledge
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The experts on chronic illness are the people living with chronic illness. #chronicillness #chronicdisease #longcovid #longcovidawareness
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What is Long COVID? Living with #LongCovid Q&A part 2. mentalhealthandwellbeing.sub…
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My brain struggled to process anything & I would doze in & out of sleep but the essence surrounding me were the happy voices of my kids & the warmth of Kendall’s arms. We were all able to be with each other just as we were, space for each of us, emotions tranquil for a day.
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A friend started a GoFundMe for us to support our past and ongoing #medicalexpenses. Having 3 people in 1 family with severe #chronicillness is costly in many ways, including financially and so the support is something we desperately need. #LongCovid mentalhealthandwellbeing.sub…
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Here is a diagram that shows the DMV or "hidden closet" that the virus creates for replication.
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Speaking at #GVNScienceofLongCOVID, Daniel Chertow, MD, MPH, Head, Emerging Pathogens Section, @NIAIDNews, @NIH shares autopsy findings indicating SARS-CoV-2 persists in multiple organs and brain for months; foremost in the respiratory system tinyurl.com/mmmhe7ut
One Change retweeted
More evidence of residual virus after initial recovery as a culprit for #LongCovid in some people onlinelibrary.wiley.com/doi/… @GiaccaMauro
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One Change retweeted
Brain fog and other symptoms of #LongCovid appear to be correlated with delayed clearance of the virus from the upper respiratory tract, via 9 serial PCR assessments out to 42 days in 73 participants medrxiv.org/content/10.1101/…
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