Not giving up coffee Doc๐๐บ๐ฆ๐ท retweeted
Awareness of IBD is rising. That is a genuine achievement.
IBD is more visible than it was. Patients are telling their stories. Charities, clinicians, nurses, researchers, dietitians, psychologists and advocates are pushing Crohnโs disease and ulcerative colitis into the open.
The old idea of IBD as a niche โWesternโ disease no longer holds.
But awareness is not access.
Even in the UK, IBD care can still feel like a postcode lottery. Rapid diagnosis. Faecal calprotectin testing. Endoscopy. Imaging. Specialist nursing. Dietetics. Psychological support. Monitoring. Advanced therapies.
Too often, access still depends on where a person lives.
Globally, the gap is wider still. Some people receive high-quality, treat-to-target care. Others struggle to access basic diagnostic tests, routine monitoring, or the medicines that could change the course of their disease.
This is the principle I will not move from: IBD care should be based on need, not postcode, income or passport.
Awareness matters. But awareness without access is not enough.
Equity is the work.
Keep an eye out for the forthcoming Lancet Commission on global IBD.
This is the conversation we need to have next.
Not giving up coffee Doc๐๐บ๐ฆ๐ท retweeted
Itโs #EatingDisorderAwarenessWeek.
Many with #IBD struggle with ARFID (Avoidant/Restrictive Food Intake Disorder). Unlike other eating disorders, ARFID is often driven by a fear of pain or negative consequences after eating - a daily reality for #Crohns & #Colitis patients. ๐๐ช
Not giving up coffee Doc๐๐บ๐ฆ๐ท retweeted
Teach your children how to think, not what to think.
Chronicles of Dad's Taxi: last instalment this year delivering student offspring to placement beyond daily commuting range ( dumb system) , lateness of journey meant hotel for me last night and no dinner ...but oh ,the wonder of looking at the sea this morning over breakfast.
Not giving up coffee Doc๐๐บ๐ฆ๐ท retweeted
Suicide.
I'm choosing to be deliberately blunt and provocative in this post because it's necessary. Government, charities, football clubs are all pushing water up a hill in highlighting what is undoubtedly a major health crisis.
You take a rope.
You put it up in a garage or a tree nearby or far away.
You're thinking about every loved one you'll leave behind as you put that rope around your neck.
Then you drop.
Some are decapitated.
Some aren't.
All are found by someone who has a lifetime of trauma that will never leave them.
A son.
A daughter.
A brother.
A sister.
A mother.
A father.
I know 2 men who hung themselves.
One was found by his Mom.
One was found by his brother.
Neither have recovered fully. 20 and 30 years on.
A life sentence for people who were already worrying, terrified their loved one may do something.
So just visualise the above and ask, "is there another way"?
A segway for a moment.
I do a few Q&A's every year. Tales of yesterday with a 99% male audience of my age group.
After the stories and fun, my last question back to the audience is..
"Hands up if you struggle with a mental health issue".
Nobody ever puts a hand up. Despite 1 in every 3 of 500 attendees statistically struggling.
"Ah, nobody, that's fucking brilliant! Well I do! ". I then graphically tell people, stunned into silence about how a rope around my neck in the middle of nowhere jolted me to go home and cry like a baby to my Mom.
After the Q&A has finished, something always happens. I'll be chatting to a few guys, saying bye and one by one, men will come over and whisper " I struggle".
Or my mailbox the next day will have 30 emails from guys, their partners or kids saying " Dad/Uncle /Brother was there last night and what you said hit them hard".
And that's how some people realise that it's time to speak to a pal or family member or even rant to me in an email. It works, I often get a follow up email a year or 6 later saying that they took responsibility for their suicidal feelings and are now flying.
Humans are programmed to want to live, to have families and to keep the species growing and thriving. So for a human to want to short circuit that desire isn't normal, and it should never be spoken of as normal. It's the ultimate red flag.
If you suspect your mate, Dad, Brother, Uncle is struggling mentally, they deserve your intervention.
They deserve a " are you OK, please tell me what's up".
They deserve an opportunity to get past wanting to hang a rope over a tree or in a garage and slowly struggle until they die and you find them.
If you've been there and trust me I have plenty, then you'll know that text out of the blue, or a footie mate or one of your kids asking jow you are can open the curtains to some sunshine.
Because when suicide is your only answer, the room is already dark, and you can't see a way out.
So please, fucking pretty please, ask that husband, Dad, Uncle, Cousin, footie pal TODAY how they are.
You may be shocked what comes back but extremely glad that you asked.
For those who struggle, you're not alone.
Not giving up coffee Doc๐๐บ๐ฆ๐ท retweeted
You can get information on what you can do to help prevent suicide from @samaritans here:
samaritans.org/support-us/caโฆ
Not giving up coffee Doc๐๐บ๐ฆ๐ท retweeted
Today is World suicide prevention day.
Every 90 minutes, someone in the UK or Ireland dies by suicide. We can all make a difference by checking in on those around us.
Insomnia doe strange things to me...finally gave up at 5.00 a.m. made some ' face slap' coffee and listened to Foxtrot by Genesis all the way through on headphones trying not to disturb cats or wife by drumming along on the kitchen table.
Whenever did 'increasing shareholder value' bring improved consumer satisfaction ?
Context: current Acquisition-> demerger fashion.
Ps :May have blogged about this and more generally the quest for infinite growth.
Just watching Wimbledon on TV, and apparently the legend that is Bjorn Borg is the same age as me,although you wouldn't know it looking at the pictures....
Polite Rant: I don't like ordering delivery and food arriving cold,or spilt, or way later than promised.
Make it easier to repeat order...not a leap of faith.....
Got a party political flyer through the door for a petition I didn't know about, and wanted to sign..but it also wanted too much personal and political information so I abandoned my attempt to sign the petition. They have all my details on the electoral register anyway..
Twitter is flat.
Replying to @bruceclarkprof @MoveBravely @Mechani_Kong @SharonGChiara @FinanceDirCFO @grightford @GrumpyAgencyGuy @Runsforcoffee1 @alicesalisburyj @ramirezreyes @thatAlanCh @RuthArnold @liseymacd @ajwillshire @TomLewis_CPI @Phillip_Oakley @johnnieego @dave_wakeman @seanmfdineen @KBallsays @Simon83 @Nickhalo01 @buffalogiu @scmeikle @MikeyFox @gregorykennedy @caff @BernardJansen @MaggieSachiKhoo @KevinRothermel @mrdipeshashah @geriwithetc @janthonylong @booksandwine76 @Dr_Draper @CJPanteny @DougGarnett
Makes sense! We got to the end of twitter with the pub thread!๐ช
Same problem Paulina
Replying to @MoveBravely @Mechani_Kong @SharonGChiara @FinanceDirCFO @grightford @GrumpyAgencyGuy @bruceclarkprof @Runsforcoffee1 @alicesalisburyj @ramirezreyes @thatAlanCh @RuthArnold @liseymacd @ajwillshire @TomLewis_CPI @Phillip_Oakley @johnnieego @dave_wakeman @seanmfdineen @KBallsays @Simon83 @Nickhalo01 @buffalogiu @scmeikle @MikeyFox @gregorykennedy @caff @BernardJansen @MaggieSachiKhoo @KevinRothermel @mrdipeshashah @geriwithetc @janthonylong @booksandwine76 @Dr_Draper @CJPanteny @DougGarnett
I canโt see what youโre replying to.๐ญ
Scrolling stopped working for me today, canโt see the pub thread at all. Am I the only one with this pub problem?
I see Simonโs 2 initial tweets, then an ad, and the last tweet in the pub thread.
Elmo is destroying the pub.๐ค














