A storytelling and advocacy org by and for by people with vulvovaginal/pelvic pain conditions.
Everywhere
Joined February 2020
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Tight Lipped retweeted
.@Cornell still refuses to hire even one M.D. gynecologist to serve its 13,000 female students.
@cornellsun published my encounters with excruciating pain and sexism while seeking healthcare at Cornell Health for chronic vaginal pain.
cornellsun.com/2023/09/23/gu…
Tight Lipped retweeted
My latest for the Washington Post washingtonpost.com/health/20…
thank you @drrachelrubin @TightLippedOrg and so many others for the incredible interviews!
cc @AshleyGWinter @DrJenGunter
join us for an online community event october 24th from 3-4:30pm! sign up here: flipcause.com/secure/cause_p…
Tight Lipped retweeted
Invisible illnesses often make it difficult for us to say we're disabled. No matter how we present or what we face every day, we need to remember it's okay to accept this aspect of our lives and ask for help.
ALT Light blue background with darker blue image of the handicapped symbol with an arrow pointing to their head saying disabled. A standing dark blue figure with an arrow and it says also disabled. Below in parenthesis not all disabilities are visible.
Our latest pod episode tells the story of the first study that looked at how prevalent vulvodynia is in the general population. And it turned out, it’s really common!
Art by relstein on IG, audiogram by @humansofhummus !
Our zine is digitized now! Here’s a snippet from @beckles212 and her piece “thank you for your awesomeness” (1/3)
“I was convinced my pelvic pain was my body telling me I was frigid… so I started getting treatment for vaginismus and vestibulodynia. Shortly after sex therapy, I began to have this panicked feeling.” (2/3)
“So I concluded that what I needed to do—as part of my treatment (I swear!)— was to book a night at a nearby Sheraton and hire a high-class male escort for two hours.”
To find out what happens next, head over to our digital zine!
tightlippedpod.com/our-zine
❓Which of these institutions do you think supports vulvovaginal pain research?
30%Women's Health
20%Gynecology
10%Child Health
40%Chronic Pain
10 votes • Final results Tight Lipped retweeted
Really wild after all of these years writing and reading about maternal health that it’s considered a health innovation to save Black mothers from dying of childbirth.
Just save Black mothers. Just listen to Black mothers when they say something is wrong.
Normalizing masks.
Safer childbirth for Black mothers.
mRNA vaccines for cancers.
Robot surgeons?
In the last century, the average human life expectancy doubled. Here's @NYTMag's list of 43 innovations that could help us do it again — maybe. nyti.ms/3xHCLjs
Tight Lipped retweeted
I have a chronic disease: endometriosis. I've had to have surgeries, I've been on and off hormones to suppress my periods - it has caused me so much pain and infertility which I've been battling for years and YEARS.
Another bump on filling out our community survey so we can keep improving Tight Lipped for everyone!
tightlippedsurvey.paperform.…
Now that we’ve wrapped up S1, subscribe to our newsletter/Spotify/Apple Podcasts to get notifications for our S2 eps!
tightlippedpod.com/subscribe
🧵:In our last episode, we shared that there’s only 33 cents for research funding per vulvodynia patient. We know that #vulvovaginal and #chronicpain are SO underfunded and overlooked, which is why we started this. Tight Lipped is for YOU! (1/3)
You are not alone, and as we wrap up our first season, we want to get a sense of our listeners and their needs, so we’re asking you to fill out our listener survey here: tightlippedsurvey.paperform.… (2/3)
We also wanted to share our first 8 episodes + there’s more to come! DM us if you have any ideas or things you want us to share in the future. Thanks for listening everyone 💋💗
tightlippedpod.com/episodes-…