A storytelling and advocacy org by and for by people with vulvovaginal/pelvic pain conditions.
Everywhere
Joined February 2020
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Tight Lipped retweeted
.@Cornell still refuses to hire even one M.D. gynecologist to serve its 13,000 female students.
@cornellsun published my encounters with excruciating pain and sexism while seeking healthcare at Cornell Health for chronic vaginal pain.
cornellsun.com/2023/09/23/gu…
Tight Lipped retweeted
My latest for the Washington Post washingtonpost.com/health/20…
thank you @drrachelrubin @TightLippedOrg and so many others for the incredible interviews!
cc @AshleyGWinter @DrJenGunter
Tight Lipped retweeted
Invisible illnesses often make it difficult for us to say we're disabled. No matter how we present or what we face every day, we need to remember it's okay to accept this aspect of our lives and ask for help.
ALT Light blue background with darker blue image of the handicapped symbol with an arrow pointing to their head saying disabled. A standing dark blue figure with an arrow and it says also disabled. Below in parenthesis not all disabilities are visible.
Tight Lipped retweeted
Really wild after all of these years writing and reading about maternal health that it’s considered a health innovation to save Black mothers from dying of childbirth.
Just save Black mothers. Just listen to Black mothers when they say something is wrong.
Normalizing masks.
Safer childbirth for Black mothers.
mRNA vaccines for cancers.
Robot surgeons?
In the last century, the average human life expectancy doubled. Here's @NYTMag's list of 43 innovations that could help us do it again — maybe. nyti.ms/3xHCLjs
Tight Lipped retweeted
I have a chronic disease: endometriosis. I've had to have surgeries, I've been on and off hormones to suppress my periods - it has caused me so much pain and infertility which I've been battling for years and YEARS.
Tight Lipped retweeted
Hi disabled and/or chronically ill friends,
What's something that a doctor has done to help you have a good appointment?
Tight Lipped retweeted
Understand that police violence is a #reproductivejustice issue. It is a #birthjustice issue. It is a #humanrights issue. Mothering a Black child under the constant threat of state sanctioned violence means that when I see #DaunteWright I see my child. Why don’t you? #BMHW21
Tight Lipped retweeted
Frankly, there needs to be dedicated education for OBGYN residents, including learning the exam. And also to consistently ask about pain when women have urinary sc so they don’t get Kegel advice if they might be hypertonic.
Tight Lipped retweeted
Honestly, this is probably 50% of the reason I am on social media. It’s the most powerful tool we have to raise awareness in and out of academia so this guidance can find its way into our classrooms and clinics
Tight Lipped retweeted
Pelvic floor PT is so incredibly effective for this. Now how do we educate more providers to be able to accurately diagnose myofascial pelvic pain and not keep treating it as a UTI?
Tight Lipped retweeted
Pelvic floor physical therapy for myofascial pelvic pain has level 1A evidence to support its use. 💛
Tight Lipped retweeted
I often think I've got this "acceptance" thing down with regards to pain.
And then other times I'm just punched by the (re-)realization that I could feel like this forever, might never *not hurt* ever again, and it... well, it hurts, but in a raw, scary, different way.
Again.
Tight Lipped retweeted
𝔽𝕖𝕞𝕒𝕝𝕖 ℙ𝕖𝕝𝕧𝕚𝕔 𝕄𝕖𝕕𝕚𝕔𝕚𝕟𝕖 𝕒𝕟𝕕 ℝ𝕖𝕔𝕠𝕟𝕤𝕥𝕣𝕦𝕔𝕥𝕚𝕧𝕖 𝕊𝕦𝕣𝕘𝕖𝕣𝕪
𝓃𝑜𝓊𝓃
1. A surgical subspecialty of Ob/Gyn or Urology that treats dysfunction of the female pelvic floor
See also:
-Urogynecology
-Vagineering
-Pelvic Florist
Tight Lipped retweeted
Protruding labia minora are not caused by aging, male hormones, sexual activity, or masturbation.
So why do so many doctors publish that they are, despite no supporting evidence?
What can we do to get these false claims removed from medical journals and textbooks?
Tight Lipped retweeted
This #DisabilityDayofMourning, remember the disabled people killed by their caregivers; the disabled people killed by restraint; the disabled people killed by police brutality; the disabled people lost to COVID; all those disabled people killed by a violently ableist society.
Tight Lipped retweeted
It's almost March, which means it's almost Endometriosis Awareness Month. If you are writing or editing anything about endometriosis here are some things to keep in mind that will make your life a whole lot easier. (1/)
