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Putting patients at the forefront of health outreach, advancing scientific advancement and promoting equitable healthcare for all communities ✨

United States
Joined October 2015
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WeHealth retweeted
Dr. Travis Craddock designs disease-specific brain models to understand conditions like Gulf War Illness, an approach that’s changing the landscape of medical research. Watch the podcast, hosted by @hayliepomroy. brnw.ch/21wKnRo #brainhealth
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There are many reasons why the Anthrax and other vaccine injuries were not included in the initial Gulf War Illness protocol. However, since our advocates have been fighting to bring awareness to this issue. The VA has now added vaccines as part of four categories that cause GWI
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WeHealth retweeted
Polybio is supporting several trials of potential #LongCovid treatments. Working with @PutrinoLab & @CoRESinai, Polybio President Dr. Amy Proal is spearheading an investigation of repurposed HIV antivirals Truvada & Maraviroc for treatment of LC, targeting viral reservoirs
Since my episode with the wonderful @longcovidanswer has been released highlighting viral persistence as a major driver of some #LongCOVID pathology, I’ve been asked repeatedly, “what should we do about it?” - totally fair question. Here is my proposed roadmap: 1/
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University of Tennessee: 'Research Team Receives $1.5 Million to Study Neurological Disorders Linked to Long COVID' The National Institute of Mental Health has awarded a significant grant of $1.5M to Jianyang Du, PhD, of the University of Tennessee.. news.uthsc.edu/research-team….
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WeHealth retweeted
With host @hayliepomroy, Dr. Anthony Komaroff expounds on the various triggers of #MECFS, such as infections, physical trauma, and Gulf War Illness. Catch the full podcast here. youtu.be/Wi7y1vCvays #chronicillness
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Sauna vs Pesticides/Chemicals: Promising RCT showing that the Hubbard Detox Program: jogging + sauna + niacin/supplements improved 11/16 markers of health for Gulf War Illness Veterans affected by toxic exposure to pesticides and chemicals. Key Components of the Hubbard Detox Program: - Exercise: Participants perform light aerobic exercise, such as jogging or treadmill walking, for about 20–30 minutes daily. Purpose: Stimulates circulation and promotes the mobilization of fat-stored toxins. - Sauna Therapy: Daily sessions in a sauna, lasting several hours (up to 2-4 hours) with breaks in between. Purpose: Induce sweating to eliminate fat-soluble toxins through the skin. Participants are encouraged to hydrate frequently and monitor electrolyte balance during sauna use. - Niacin (Crystalline Nicotinic Acid):High doses of niacin (a form of Vitamin B3) are administered, starting from low doses and gradually increasing over time. Purpose: Promotes lipid metabolism and triggers a "niacin flush," which may help release toxins stored in fat tissue. - Supplementation: A variety of vitamins, minerals, and oils are provided to support detoxification and replenish nutrients. - Hydration: Participants consume plenty of water and electrolyte drinks throughout the program to prevent dehydration and maintain electrolyte balance.
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For anyone with MECFS or long covid this is worth a watch. It is an in-depth analysis of the latest research on the conditions and cites a number of different researcher's results.
12/27 - Long Covid The Answers: 'A Potential Treatment & Biomarkers for Long COVID (E26) ft Prof Nancy Klimas' Klimas: "So oxidative stress is very damaging to cells. It's a very big player in Long COVID." youtube.com/watch?v=yG1bG35K…
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Congratulations to NCNED researcher Ms Etianne Martini Sasso who submitted her PhD Thesis yesterday! 🎉🎉 Etianne’s Thesis examined TRPM3 ion channel function in the pathogenesis of #MECFS, #LongCOVID and #GulfWarIllness and Naltrexone as a potential treatment. #GriffithUni
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Approximately every 3 minutes one person in the US is diagnosed with a #bloodcancer. RT to help us raise awareness. #BloodCancerAwarenessMonth
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Please RT & read about research to prevent some blood cancers: bit.ly/1K0XY6c #BloodCancerAwarenessMonth
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Mycoplasma infections; lyme coinfections; Gulf War Illness; Bioterrorism… The common links can be found in the research by Dr Garth Nicolson. Best viewed from a desktop computer or large screen. So much research here. Drill down. immed.org/
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The Patient Researcher compares 2 models for Parkinson's. One that patients live with and has an easy target for disease control. And one that omits that target, allows the disease to progress and brings in millions for Big Pharma. Which one does your neurologist use?
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Did you know that half (50%) of persons with Parkinson's do not discuss the impact of Parkinson's on their driving ability w/ their healthcare teams? WOW! Why are we not continuously engaging folks from the time of diagnosis? Marjan Meinders and colleagues @MDCP_Journal tackle this issue. Key Points: - This team was interested in how the diagnosis of Parkinson's affects 'the possession of a driving license, how people adapted driving style, and to what extent they had communicated about their driving ability with their healthcare professionals.' - 10-item survey. - 540 folks in the study. - 84% had a valid driving license. - 78% who gave up their license did it voluntarily. - 40% adjusted their driving style. - ~50% not discussed the impact w/ healthcare professional(s). My take: Discussions about driving are hard. Losing a driver's license is traumatic. In my view, many healthcare professionals avoid the discussions and wait too long until a crisis or accident occurs. We are kicking the can down the road! What would be a better path? How about continuous discussions (over years). Ideally these discussions would not be rushed. Ideally we involved occupational therapists and rehabilitation teams. Ideally, we would be helping people to more safely drive earlier in the disease and continuously checking in with them. Maybe I just live in an ideal world but I believe we can do a better job. movementdisorders.onlinelibr… #Parkinsons
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Please support my friend, Barbara Salsberg Mathews's new book "What Parkinson’s Feels Like – " and download  parkinsonseurope.org/what-pa… @ParkinsonsEU @PdAvengers @ParkinsonCanada @SalsbergMathews
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Attending #ASHG2024? Take a look at our latest work! On Thursday, @JunHeJason will present a symptom-level analysis of Gulf War Illness and @DavidDavtian1 will show our transcriptomic analyses of COVID-19. On Friday, check out the GWAS of anxiety disorders led by @ElenaFriligkou
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